ARGH! I just wrote a pretty epic Boring Medical Update which X has lost. Dagnammit. %$&%*$! %*$&%*^^^^^!
I seethe.
So, the short version now, as I am thoroughly pissed off. A lot has happened since October. The anal fissure that seemed to be on the mend persisted, and persisted, and persisted, until EASTER. At that time my colitis was so bad I spent the Easter weekend in bed (at my girlfriend's parents - great impression, huh). So, a change of medication was called for, and I've been on methotrexate, which makes me feel nauseous two days every week, and requires some considerable time off work for getting the necessary blood tests done (every week) and going to get The Jab. Even better, the anal fissure RETURNED after about a month. Even better than that, the skin around what the hospital staff rather charmingly persist in referring to as my 'tail end' has become very swollen and sore. Since there is no sign of an abscess or fistulae, my current theory is that this might be to do with the methotrexate, which can apparently be detected in patients' rectal mucosa (whatever the heck that is), and is also a skin irritant. So I'm thinking, either due to the fissure or my own deliberate attempts to keep my botty relaxed (trying to keep good blood circulation), there might be a small amount of discharge which is getting onto the bumskin and making it go bananas.
The main alternative theory is that it's an infection of some sort, which would suggest infliximab treatment can't start until it's fixed.
Tomorrow I go into hospital for my first infusion of Infliximab, which may or may not work, but sounds rather scary anyway. Right now, though, I feel like I've hit a bit of a low point. Frankly, the bottom soreness eclipses both the anal fissure and the colitis (which is actually Crohn's Disease, according to the latest colonoscopy). I don't know how I will manage when I go back to work on Tuesday, because I just feel so low and feeble. To top it off, I've been back from holidays for a couple of days, the weather is miserable, and half my windows are obscured by scaffolding, making the flat a very dingy and dispiriting place, especially for someone whose sore bottom really means they should just stay at home.
All in all, pretty miserable.
I seethe.
So, the short version now, as I am thoroughly pissed off. A lot has happened since October. The anal fissure that seemed to be on the mend persisted, and persisted, and persisted, until EASTER. At that time my colitis was so bad I spent the Easter weekend in bed (at my girlfriend's parents - great impression, huh). So, a change of medication was called for, and I've been on methotrexate, which makes me feel nauseous two days every week, and requires some considerable time off work for getting the necessary blood tests done (every week) and going to get The Jab. Even better, the anal fissure RETURNED after about a month. Even better than that, the skin around what the hospital staff rather charmingly persist in referring to as my 'tail end' has become very swollen and sore. Since there is no sign of an abscess or fistulae, my current theory is that this might be to do with the methotrexate, which can apparently be detected in patients' rectal mucosa (whatever the heck that is), and is also a skin irritant. So I'm thinking, either due to the fissure or my own deliberate attempts to keep my botty relaxed (trying to keep good blood circulation), there might be a small amount of discharge which is getting onto the bumskin and making it go bananas.
The main alternative theory is that it's an infection of some sort, which would suggest infliximab treatment can't start until it's fixed.
Tomorrow I go into hospital for my first infusion of Infliximab, which may or may not work, but sounds rather scary anyway. Right now, though, I feel like I've hit a bit of a low point. Frankly, the bottom soreness eclipses both the anal fissure and the colitis (which is actually Crohn's Disease, according to the latest colonoscopy). I don't know how I will manage when I go back to work on Tuesday, because I just feel so low and feeble. To top it off, I've been back from holidays for a couple of days, the weather is miserable, and half my windows are obscured by scaffolding, making the flat a very dingy and dispiriting place, especially for someone whose sore bottom really means they should just stay at home.
All in all, pretty miserable.
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